Posted 02 July 2004 - 11:25 AM
Posted 02 July 2004 - 11:51 AM
For most people, joints will make noises as they age. People who've had previous injuries to joints may also have noises as the cartilage may no longer be smooth. This isn't necessarily problematic. However, for people with EDS (like myself and Michelle), joint instability is an issue--inlcuding dislocations. Mine make almost no noise when they dislocate--although when a I've dislocated my jaw I could hear the joint snap out of place, probably because it's just below my ear. I've partially dislocated knees and hips--no sound other than maybe a muffled click of the bone moving out of the groove.
Posted 02 July 2004 - 11:53 AM
Posted 02 July 2004 - 12:28 PM
Posted 02 July 2004 - 04:36 PM
More and more I am learning that I have classic signs of EDS and yet my doctor told me I am "borderline". What does this mean? I am in between doctors right now, seeing a new physician on August 3rd and hoping that I can get some new insight on this. I am tall and thin, definite hypermobility that I just found was noted at Mayo Clinic in my medical records, light skin and light hair/eyes, long fingers & toes, bones pop, stretchy skin, easy bruising, joint pain that recurs in the same places frequently, and of course POTS...maybe I am just looking into it too much though...
Posted 03 July 2004 - 09:41 PM
My whole upper body is unstable, and my hips, knees, ankles all slip---but i have never dislocated. I have almost dislocated shoulders, just from bracing myself to get up from a chair. My neck is so unstable---i'm afraid that if I ever get into a fender bender...........well I just don't want to go there...........
I have brought up EDS----but apparently I don't fit the blond hair, blue eyed profile. And i'm not real thin----not heavy---but not thin. I was thin most of my life until the POTS meds. Anyway, I truly believe they need to look beyond this profile used for EDS. I believe too many people will go undiagnosed with this profile.
I'm just not a person that is taken seriously-----for what ever reason---i'll never know. Docs don't take me seriously, my family, and most of my so called friends. Dr. Grubb, Dr. Heffez, and hopefully Dr. Milhorat and Bolognese have been the only Docs to help me put things together.
Keep trying to get answers---don't give up.
Posted 04 July 2004 - 07:08 AM
For what it is worth...here's my 2 cents.... When I was diagnosed by Dr. Grubb with POTS and EDS (hyperjoint mobility), he said that those with EDS are 'often' fair, blue eyed, and light skin....he also said, 'you look like you all could be cousins.' I have also read this in some research articles too.
FYI...at times I will hear my joints pop out of place and sometimes I am not aware they are out of joint.
The biggest problem I have is the collagen holding my veins, so they can help constrict the veins, is the 'wrong' type which is a part of the Hyperjoint mobility (EDS III) problem.