Weaning Off Of Cardizem Cd And Scared To Death!
Posted 07 July 2006 - 03:19 PM
Well, I have a new gp, and she seems wonderful. She's running all kinds of tests to find out why I'm still not functioning very well, after all that I've gone through since March (tests, hospital stays, chronic pain program, medications out the wazoo). I know it will probably come down to the POTS being triggered by all that, but at least I'll know that everything else is okay.
Here's the concern for today: She's weaning me off of my calcium channel blocker, Cardizem CD, 240 mg taken once a day for over seven years. I know, from what I've read here, that CCB's are a big no-no for POTS patients, and I should never have been on it anyway, so going off of it is probably a good thing, but I'm truly scared to be without it. I've had tachycardia over the years, even on it, and my bp is way too low (that's why she's taking me off of it), and I'm having what I think are side effects from it, but I'm still scared.
She's taken me from 240 to 120 for three days, I skipped a day, now I'm taking the 120 every other day for three pills, then I'm done. Does that sound right to you all? Heck, my endocrinologist from the CCF told me to just stop taking it. I asked if that was wise after all these years and he said, "Oh, probably not." Duh! Anyway, I feel better today after not taking a pill yesterday. My bp is a little high, and my heart rate is higher, but I don't feel so bad. Now, I don't want to have to take the 120 every other day, but I don't want to stop taking the pill too abruptly either. What do you all think?
Thanks for your opinions, in advance.
Posted 07 July 2006 - 08:37 PM
I would be scared too! I can tell you that I've heard of people being taken off of both BB and CCB and other than withdrawl type symptoms (more severe for those of us) it goes okay - but some people have problems to, so it all depends. I guess my suggestion would be to keep some on hand for when your tachycardia gets really bad and maybe on your own, go off of it a little slower than they are suggesting if you have enough pills to get through... that's what I've done with med changes, I just go about it a lot slower than they recommend because so often my drs. don't seem to realize how sensative I am to med changes/dose adjustments.
Hope it all goes okay for you.
Posted 08 July 2006 - 08:20 AM
Is she putting you on something else?
Posted 08 July 2006 - 10:21 AM
Oh, what joy a POTS life is.
Again, thanks for the suggestions.
Posted 08 July 2006 - 11:50 AM
And I hope that your doc has another beta blocker in mind to start you on?? One that might work better for you?
hang inthere and feel better!