Posted 12 July 2005 - 06:07 PM
(Also, for the record, I have freaky blood pressure and pulse. Not from standing, but in general. Some of you will call me a liar, but I've startled physcians and nurses when getting my BP taken in the office or hospital, because at times it runs 50's over 30's and im asymptomatic. They were skeptical that it would be that low and often another staff memeber took my blood pressure with a different cuff and got the same results. Regardless of wether I was laying or sitting up. I've had a couple hospital stays in which nurses came bolting in my room every hour because my blood pressure would drop into the 50's even upper 40's over 20's. They always thought it was a false reading so they would do the manual cuff and get the same reading. Freaks me out. But, back to the fever...)
Posted 13 July 2005 - 08:02 AM
The feverish feeling--not sure I'd describe myself as feeling that way. I often complain of being hot, despite the ambient temp being fine and my body temp fine.
The bp issues certainly could fit the dysautonomia dx; as for the feverish feeling, I suppose it's possible. However, I'm going to give you my familiar refrain that while it could fit dysautonomia, one should not assume all symptoms actually ARE dysautonomia. Symptoms you aren't sure about should be investigated by your doctor(s).
Posted 13 July 2005 - 04:16 PM
Posted 13 July 2005 - 04:23 PM
Posted 14 July 2005 - 02:30 AM
EDIT: It's 5 AM. I am feeling very feverish. Walking out of my warm bedroom into the cooler house is a shock.. I'm very sensitive to the tempature change. I even feel a little achy. I was convinced that I am sick, so I took my tempature. 98.7. No fever. This is strange. I know the advice you're going to give me: Go to a doctor. I should probably take it. But I was offered a great deal on a truck and have to drive 350 miles to get it (700 round trip) because of the offer expires today.. so.. I'll be back later tonight.
On the blood pressure: Interesting. I run my lowest blood pressure while sleeping. When woken from sleep during these episodes I'm often weak and semi-alert, and a little spacey. It rises once I really stir and get myself going. I'm not sure if it's normal for blood pressure to run 30/0 during sleep or even when I've been awake. I should probably start seeing a doctor for this condition. I saw one in the past when I would faint upon standing (constantly). Tilt table test diagnosed me. DX: Dysautonomia/POTS. I looked up dysautonomia and learned that many of the other general symptoms associated with the disease is what I've suffered from my entire life. I even searched this forum and found posts from last year in which people complained of feeling hot and feverish at times. The more I've read about dysautonomia, the more I believe there is more to this condition than meets the eye. I appreciate the replies. Take care.
Posted 14 July 2005 - 09:42 AM
Other than that, I can tell you I feel hot at times and have had my sed rate and temp checked, and they are normal. So I have no explanation but wanted to say "me too."
Posted 14 July 2005 - 12:06 PM
Posted 15 July 2005 - 02:06 AM
Because dysautonomia is the bucket of symptoms and not telling of the exact problem, it could be a number of things causing this. It's always a detective job to figure it out and/or a Herculean job to live with it.
Whatever is causing it, I know it is so frustrating to have my perceived temp to be off. If it is interfering with your sleep, make sure your doc knows because the more sleep you lose, the weirder your symptoms can get. -Deb
Posted 16 July 2005 - 10:35 PM
Posted 17 July 2005 - 03:53 PM
welcome to the forum. i've been away the past few days so am a bit late on responding but had a couple of thoughts.
regarding the temperature, i tend to be cold rather than hot but over the past year have had issues with low-grade temps. one thing we figured out is that my "normal" temperature is lower than the standard 98.7. so...when i have a temp of 98.7 it is actually hot for my system. according to "textbook" a 99.9 means next to nothing but for me it's the equivalent of a high fever as my "normal" is so low. i've heard the same from some others.
regarding the BP, it is normal for one's BP to be lowest at night. not necessarily as low as many of ours get, but lowest none the less. i too have scared many nurses & a few docs running with beeping monitors, readings that won't register, and the like b/c of low BPs.
glad to hear you survived your trek...
Posted 17 July 2005 - 04:46 PM