Sue, I also have the low BP upright and also have extreme hyper pots. Not all hyperadrenergic pots patients have high BP. Perhaps most but now all. I know of a Dinet member who also has hyper pots and also has low blood pressure, so please don't tell me it's not possible.
My understanding with this specific condition is that often the diastolic BP drops quickly. Mine does, so am wanting to get this testing done, but am deciding if I can do it from home with a current doctor or if I should go to Mayo. Have been there many times, and they do a good job, but it's costly and tedious. Regardless of what testing you've had done, they will redo all testing. All.
I stopped counting last year after my cardiologist billed my insurance over 15,000.00. Worth it, but thinking about spending the time, energy and money to do it all over again at Mayo is tiresome. Lucky to have good insurance, but it seems excessive.
But that's how Mayo operates. You can give them all the prior records you have and regardless of how recent or exceptionally done, they will redo every single test.
Miqual had this test done from afar, and that's the way I'd like to proceed. I'd like to get the precise code for ordering this test so I can share it with a doctor who will order it. If anyone can share that I'd appreciate it.