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Tristessa

Pain - Feels Like A Bruise But There Is No Bruise

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I have just started havin this pain that starts at the bottom of my shoulder blades and goes across and down. It does not quite extend to my lower back/lumbar area. This pain feels like I am bruised and is very tender to the touch. Does anyone know what this is?

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Do a search on the forum for "coat hanger pain" and see if that fits with your symptoms

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I am still trying to figure out what this pain is. I (and my mother) actually have this pain in our skin all over our body. Mine is much more severe than my mom's. Every inch of my skin feels bruised but there is no bruise there. I am a touchy feely person but don't like to be touched now because it just causes me pain, like when you push on a bruise. At my last neuro visit, he said that he is going to think about testing me (skin biopsy) for small fiber neuropathy given this pain in my skin and my excessive sweating. He said its not the most typical presentation but that it is a possible explanation.

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Katybug....that is exactly the type of pain I have been trying to explain to my specialist :( like being sunburned or bruised..... he is now also referring me to have testing done for peripheral neuropathy...only I am opposite to you with the sweating thing....I hardly sweat at all anymore....weird and brutal in this heat :( he also just recently mentioned maybe trying IVIG to treat it? another mystery for us....... hugs

Bren

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Oh my. I really feel sorry for those of you who have to deal with this type of pain daily and/or all over your body. I also deal with excessive sweating myself. I wonder if my pains are the beginning of something like what you are talking about? Did yours start out in smaller areas or all over?

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Bren - I am sorry to hear you have this, too. It really stinks. I think peope think I am exaggerating when I say my skin hurts all over my body. I don't think most healthy people would make it a day with this stuff. Hugs back to you. Let me know if you get it figured out.

Tristessa - Mine did start in smaller areas but I can't tell you where anymore because I've had it for years at this point. This was one of my first symptoms, actually.

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One rheumy wants the dx to be fibromyalgia, but, I don't buy it in my case. I have an elevated anaphylatoxin, C4a, and I have had a biopsy of some weird bumps I get on my fingers come back as probable inflammatory connective tissue disease. My immuno thinks inflammatory connective tissue disease based on both of these labs and my clinical presentation. So, I am awaiting a call from a geneticist to see, if, after reviewing my med history, she will see me and the immuno also wants me to see a rheumy at Hopkins that helped another one of his patients that had a similar (although much more severe) presentation as I have.

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I have this right now - my bed sheets, clothes, stroking my skin is all very painful but with nothing to see and I have come across something called allodynia. I did have a test for peripheral neuropathy but was told people with EDS get this often but not sure if in pots.

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Tinks: yeah I had the same symptoms....just started out in small areas at first....my toes started burning especially at night (like sunburn or fire ants) now I have patches behind my thighs.....even just a light brush of anything and I am gritting my teeth in pain....both my specialists say peripheral neuropathy.....not much in the way of treatment of course :( waiting to go to Cleveland to see if they are of any help

Katybug :) hang in there! I feel your pain :( I will keep you posted if I stumble on anything....wondering if the IVIG may help you since you already have an autoimmune component? they have used it off label for CFS and neuropathy with promising results

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I had the test but no neuropathy. Haven't had it in sometime but now have it round my buttock, thigh and hip - but I have got a real painful hip too.....grinding, aching....

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ouch! poor tinks! have you tried any pain meds? perhaps you have some inflammation in that area that could be causing nerve irritation? Also I was told that skin biopsy for neuropathy can sometimes be hit and miss if they dont catch the right area.........

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Katy & Bren,

I have peripheral neuropathy and that is always how I describe my pain. Like my body is completely bruised- but they aren't there. Well, that's not true, with my syncope I'm always covered in bruises :) but not always matching up. I used to tell my parents I had a sunburn and they'd look at me and so.... Ummm... No.... And I'd say "No! On the inside." It is not always that way though... Sometimes the burning, sometimes the bruised and achy feeling, it could be anything,

I was first diagnosed with fibromyalgia and it's still technically on my records but it never seemed right to me either.

Gotta say, one of my LEAST favorite of m illnesses.... :)

Jen

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