Update On Florinef Taper....
Posted 17 April 2012 - 04:46 PM
First, let me say that I have NMH, not POTS. And, for whatever reason my bp tanks right prior to my period (so men this may not apply to you you lucky dogs!!!) and that triggers my syncopal episodes.
In the past, I've been on a high dose of Effexor (150 mg) and Florinef at the same time, and tapered the florinef prior to the Effexor because the two for me cause some nasty headaches. When I tapered Florinef first, I from .1 to 0 in one day with no problems. Then got my Effexor down to the "right" dose several months later. Again, no bp issues.
This time, we did the opposite, we worked with the Effexor prior to the Florinef, and that made all the difference and all the difficulties. With too low of Effexor: (a) I had to reduce slow (.025 every 4 to 6 weeks) and ( even at that slow of a taper, every time I tried to reduce the Florinef, I had bp dips with each reduce, and severe syncopal episodes around my period. And, I got really jittery, weak and feeling like I had no energy. I'm no doctor, but it seems for me that the serotonin and norepinephrine in Effexor: (1) gave my bp a bump; and (2) evened out my nervous system so that there was a "buffer" with each Florinef reduce.
Unfortunately, my docs didn't catch this pattern until about 6 months in, and now I have so much anxiety over the whole thing. SO, in order for me to get off the Florinef I have to go UP on the Effexor a little to give my system a little more even keel and ability to handle the Florinef reduce. I've been on Florinef for 17 months -- at the most .15.
Just goes to show how complex our fun nervous systems are, but I wouldn't have seen the pattern if I hadn't been keeping records. And, for those who have trouble with reducing your florinef (if you want to go down or off), I just offer my experience as one way that may work to manage it.
Posted 17 April 2012 - 08:21 PM
Posted 17 April 2012 - 10:57 PM
I am not on Effexor, but doxepin, and I will continue that because a few months ago I tried to d/c it and I had the same old bad nausea and chills without it.
I hope your next taper goes well! Why do we have to learn all this stuff the hard way?
Posted 18 April 2012 - 09:26 AM
I did try a "semi cold turkey" (is that a term? ) in January. After being on it for a year.... .1 normal dose. Went to .05 for two weeks and then 0, and I had several syncopal episodes (not typical for me), was extremely weak, jittery, anxious, pins and needles, just felt like I was going to fall over. My doc had me go back up to .05 and that cleared most, but not all of the symptoms...then again, around my period I had severe lightheadedness, so we went back up to .075 and stabilized there for 4 weeks. Still had issues the next month around my period, but we decided we needed to try and get off of it because I do best on Effexor and nothing else.
Posted 18 April 2012 - 09:29 AM
Posted 18 April 2012 - 10:56 AM