Trembling When Waking Up?
Posted 02 March 2012 - 02:06 AM
Posted 02 March 2012 - 08:03 AM
Posted 02 March 2012 - 08:58 AM
Years ago at the beginning of POTS, someone phoned at 5:30 a.m. to tell her daughter that was spending the night with my daughter to get ready to be picked up. I was very startled to say the least, and I literally stumbled down the hall to my daughter's bedroom to awaken the girl and give her the message. I then knew I better get right back to bed as I felt like passing out. I learned that day that I will never be able to jump out of bed early in the morning. I usually have to lie in bed for about 15-20 minutes after waking up and then my body feels okay to get up.
Posted 02 March 2012 - 10:00 AM
I also sometimes wake that way through the night. I will wake up to the bed shaking (or my husband wakes me becaue he feels it) and when I'm alert enough to realize what's going on, I discover it is me causing the bed to shake/ vibrate. I feel my pulse and it is crazy high (I don't even notice it unless it's over 130, so I'm not sure how high it gets at those times). Like you mentioned, Julie, as soon as I start moving my limbs I can feel it settling down. I tried to reach for my bp cuff one night to see if it was caused by a drop in blood pressure, but I could feel it starting to settle down as soon as moved around a little.
It takes me an hour of laying in bed in the morning before I'm really ready to move.
Posted 02 March 2012 - 10:15 AM
Posted 02 March 2012 - 10:55 AM
I'm glad you mentioned the rolling over thing... I wonder if that's what is happening for me at those times. I always have to sleep on my right side (with shoulders back, so as not to compress my chest) because I have issues sleeping any other way. During those times of vibrating/tachy I seem to inevitably find myself more in a belly down position when I wake up (???). I am thankful that the very worst (apnea/brady) of my sleep issues seem to be behind me at this stage (hopefully!) Those symptoms were helped immensely by salt and water.
Posted 02 March 2012 - 11:10 AM
Yes, it happens to me too. And I do believe your assumption is correct. I can just move my arm in bed and the same thing happens. I have this throughout the day too. I'm really tired of this response. It wears you out and the anxiousness that it causes is hard to handle. There is extreme tacky that goes along with it. You feel like your heart will literally beat out of your chest. I have the tremors and the shakes too.
I've found that taking Tramadol before bed really helps to alleviate this sort of thing and I sleep more sound through the night and don't wake up every hour with this happening. I've been trying to leave it off to re-set my body - but, this problem had gotten so severe that I broke down and took 1/2 of one at 5:00 this morning. I got some of the best sleep. Also, without it I was noticing that my feet and hands were turning more purple and my POTS was definetly worse. So, for me this is the best treatment I've found for a HyperPOTS response. My neuropathies were getting really bad and feet and hands going numb. This morning woke up with the feeling back and they aren't purple now.
Posted 02 March 2012 - 12:09 PM
Posted 02 March 2012 - 05:46 PM
If I could give one gift to the world it would be that everyone should be able to experience a good night's sleep (well food is pretty important too...). Life is soo much easier to handle, no matter what you are going through, if you can have a good solid rest.
Julie, I think having twin toddlers at the best of times would be a challenge! I can only imagine how difficult it must have been for you. As they get older they will come to know about your strength and courage and they will be shaped by that in their own lives. I hope you get things figured out soon.
Posted 02 March 2012 - 07:42 PM
Posted 06 March 2012 - 08:19 PM
I've found that taking Tramadol before bed really helps to alleviate this sort of thing and I sleep more sound through the night and don't wake up every hour with this happening. I've been trying to leave it off to re-set my body - but, this problem had gotten so severe that I broke down and took 1/2 of one at 5:00 this morning. I got some of the best sleep. Also, without it I was noticing that my feet and hands were turning more purple and my POTS was definetly worse. So, for me this is the best treatment I've found for a HyperPOTS response. It works on the NET dysfunction issues that I have and helps with pain and evidently must help with vasoconstriction/vasodilation. I want to research that last one and see if there are any studies to suggest that this is what happened. My neuropathies were getting really bad and feet and hands going numb. This morning woke up with the feeling back and they aren't purple now.
I finally got around to looking this up. I found several articles showing that Tramadol is a vasodilator. As I've always felt that I'm low flow and have overly constricted veins - at least peripherally.
Here is an article that also shows how Tramadol lowers NE levels by 60%. It definitely helps my surges and tacky. It helps with vasoconstriction and it calms me down. I also find that MY bp levels come down. (But, according to this study - that doesn't happen. But, with me it does. I have higher bp's.)
Posted 07 March 2012 - 06:41 PM
I had those short periods of severe shakes while in bed during the past 2 years, but they haven't happened in a couple of months. It may be because I take 2 salt tabs, drink lots of water and a few sips of Gatorade immediately before bed. I also do my best to sip on Gatorade whenever I awaken during the night. The episodes would usually occur when I was laying on my side and was just about to fall asleep, but reached over to turn off the lamp. Sometimes they happen if I get startled awake, too. I mentioned it to 4 different doctors and they all shrugged and ignored it.
I also have to lay in bed for about 45-60 minutes before I have the strength to get out of bed. Thankfully, my toddler is great at entertaining himself in his crib that long, as it really helps me out.
Posted 07 March 2012 - 07:07 PM
Posted 07 March 2012 - 07:25 PM
I'm sure we all go some feeling of guilt or feeling like a burden- it has been really hard for me because I'm the type who could do it all and never ask for help. Well, that person is gone and I've had to learn to let goof my controlling, bossy nature because if I'm not doing it- I'm not going to get willing helpers if I criticize. But it hasn't been easy. I bet in someways, though, I'm closer to my kids than ever- that would be my silver lining I guess. I can't do as much FOR them.., but I can be there and talk all the time.
Posted 07 March 2012 - 08:11 PM