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That Feeling Inside Your Head


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#1 Rissy2D

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Posted 07 January 2012 - 08:20 AM

This may be the strangest question that I have ever, and probably will ever ask on here, but here it goes :).

Do you ever feel as though your brain is bobbing up and down, or sloshing around when you are walking?

It may be related to the EDS more than the POTS, but I have a definite sensation of something moving around inside my skull. I also get vertigo with it and a great amount of pressure. I have had 3 MRIs which have not revealed anything abnormal. Is it just me, or do others have this as well??

#2 brethor9

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Posted 07 January 2012 - 12:24 PM

I do! I always try to explain to my doctor its like really bad constant pressure with this shunting feeling? Its so hard to describe it but it feels like my brain is pulsating or something....I get this movement feeling....soooo strange....I like you have MRI and they are normal...its an awful sensation :(

Bren

#3 lieze

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Posted 07 January 2012 - 03:55 PM

I had really strange head sensations in the beginning.
I was scared to ask about any kind of brain scan...afraid of what was going on in there based on how it felt.
I finally had a CT scan of the head a couple months ago and I was so relieved that it was normal,

#4 ramakentesh

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Posted 07 January 2012 - 09:18 PM

with this last relapse Ive had a feeling like my head is emptying like a plug hole. LIke i can feel the blood flowing out down the back of my head towards my neck. Totally freaky!

#5 Chaos

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Posted 08 January 2012 - 01:07 AM

I sometimes have a feeling like my brain is moving around inside the skull and my eyes don't line up with their sockets correctly. Kind of like those kids toys that have a ball inside a clear plastic hard ball? Where the outside ball stops rolling but the inside ball keeps moving? I get the odd pressure sensations too but they don't always occur together.

My daughter was asking me recently if I ever had this feeling because she had it. It worries me that she keeps asking me more and more questions about symptoms that she's having that correspond to symptoms I have. Things that I know I've never mentioned to anyone in the family.... Ugh.

#6 718mom

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Posted 08 January 2012 - 08:09 PM

Head pressure, head pain, mostly near base of skull, my POTs is so much better but the head stuff is getting worse

#7 Tuesday

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Posted 12 January 2012 - 09:14 AM

Do you guys take Effexor, or any other SSRIs? I used to get this exact feeling when I was a little late taking a dose, like my brain was moving around separately, waiting to catch up with my body.

#8 potsgirl

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Posted 12 January 2012 - 09:23 AM

Sometimes when I'm moving my head around, especially to the left/right, I get a feeling like my head is full of sand and it's shifting around when I move. Weird...

#9 issie

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Posted 12 January 2012 - 05:07 PM

Mines a little different. I get a pressure feel - like I have too much fluid in my head and my eyeballs feel like they are going to pop out of my head. I think if I could just squeeze my head and get some fluid out - the pressure would go away and my eyes would quite hurting and I'd feel better.

Issie