Symptoms Of Pure Autonomic Failure
Posted 14 May 2011 - 04:44 PM
Went to the Mayo Clinic (AZ) to consult the experts, but never saw any because I had a heart blockage and ended up getting a pacemaker. With my heart condition, doctors decline to use a medication like Midodrine that will raise sitting and lying blood pressure.
I'm taking Lexapro (partly for depression) and Ativan, and using non-med interventions like compression stockings and an abdominal binder. I bought one of the new Genie mattresses that raises the head of the bed substantially like a hospital bed, but I haven't tried it yet.
I'll welcome your comments on these predominantly non-medication interventions for my disease (lots of dizziness and nausea). Are they working for any of you?
Posted 14 May 2011 - 07:28 PM
Posted 14 May 2011 - 08:09 PM
I also have Gastroparesis and GERD. I am taking Domperidone 20mg before meals & at bedtime for nausea & motility. I get it from Canada. I was not able to tolerate Reglan or Erthromycin. The Mestinon also helps with motility. I take Prilosec for GERD.
I salt load, wear compression stockings, eat low fat/fiber diet 6 small meals a day, drink lots of fluids some low in carbs and do other vitamin supplements such as Alpha Lipoic Acid, Extra Vitamins B, C, D along with Moducare-Immunity pills. Many of us here are a work in progress trying to find the best treatment to treat our symptoms.
A great big Hug and welcome to you
Posted 15 May 2011 - 04:00 AM
welcome at our forum! when you check out the website you'll find a lot of information in f.e. the "what helps" section and "what to avoid". there are links to learn more but most of all the help and understanding from our members might bring you comfort.
glad you found us!
Posted 15 May 2011 - 06:04 AM
I wanted to welcome you, I don't have PAF, but i have POTS and I have two kidddos too!
I was wondering how you are feeling and how much you are able to do each day?
There are so many knowledgable people here, you will surely find a lot of answers.
Posted 15 May 2011 - 08:39 AM
Edited by corina, 15 May 2011 - 11:15 AM.
Posted 15 May 2011 - 12:53 PM
they look out for me instead of vice versa. Don't know how i would cope with little ones in the midst of this illness. I wish you all the strength and resolution you need. Adamandbensmom