Constant Abdominal Pain!
Posted 14 July 2010 - 12:32 AM
Have you noticed if certain foods make it worse? Have you tried a liquid diet and does that help? If so, you could also have dysmotility and might benefit from a gastroparesis diet (low in fat and fiber, which slow digestion for those of us with special guts). And I read recently about a research center who is doing GI testing while the POTS patients are on the tilt table. They notice that POTS patients tend to have decreased motility when upright (opposite from normal patients, who have increased motility when upright). When I was really sick with POTS, I could only eat lying down or reclined or else I'd have much worse nausea and pain.
Best wishes that you find some relief.
Posted 30 March 2011 - 08:13 PM
Im also diagnosed with esophageal dysmotility and myopathy, small bowel dysmotility via manometry, severe colonic inertia, dysphagia.
Being treated for extensive SIBO which will be a lifelong re-occurring struggle. Keeping my bowels moving as best as possible with 17grams of Nulytely daily more as needed. They also have me on doxepin.
My neurologist has diagnosed dysautonomia of unknown form and attributes the GI dysmotilities to this.
GI specialist doesnt support a neuropathy cause due to antroduodenal manometry findings suggestive of myopathy.
My clinical and diganostic presentation are atypical, a hybrid.
Very confusing picture.
To date, 25 years later, I cant find any relief from this abdominal pain 8+ constantly and peaking very often.
How is dysautonomia causing this visceral pain?
Would diet help alleviate this pain?
Open to any suggestions.
Posted 31 March 2011 - 02:19 AM
So yes, AN can cause pain in the abdominal region with no explainable reason. If your pain is due to constipation, I agree with others who recommend Miralax. I was so constipated once that when my GI ordered a test requiring a colon cleanse, the cleanse did not move my bowels! Nothing! Constipation can cause horrible and excruiating pain! My GI told me that I could safely use up to 3 doses of Miralax in one day for the rest of my life. Now,Miralax is definitely my friend!
I have had gastroparesis and small bowel dsymotility for over 6 years; however, I am just now undergoing treatment for Small Intestine Bacterial Overgrowth. Talking about a very uncomfortable condition! I never had trouble with this problem before until the abdominal pain problem became quite severe. I know my digestion must be significantly slowered, but I'm not very nauseous-- weird!
I hope you find relief from your pain soon.
Posted 31 March 2011 - 09:08 PM
Posted 07 May 2011 - 05:01 PM
My son got worse suddenly last year with really bad abd. pn. and nausea every time he tried to eat. He lost 5 lbs. in 2 weeks and couldn't even eat his own BD cake because he felt so bad. His POTS doctor said that most POTS related GI issues are from poor or disrupted (like when you stand up) blood flow to the GI tract. He increased his Midodrine dose from 10mg every 3 hours to 10mg every 2 hours and it fixed it instantly the next day. The crazy thing is that he went from having a BM 5 times a day to being constipated the next day as well so now he takes colace but that's better than having abd. pain and nausea. It also helps when he eats with his feet up. Apparently the intestines require A LOT of blood whenever they want it in order to work properly-so selfish. His doctor feels that the symptoms are POTS related so he doesn't do all of that extra testing because he knows what the results will be from his extensive experience. So far he has been right and Kyler hasn't had to endure any invasive testing at all. Best Wishes in feeling better.
I noticed your post was at the end of March, and I was wondering if you would mind if I ask how your son is doing now, and if the larger doses of Midodrine is still controlling the tummy pain? My daughter is in constant pain that increases and decreases but never goes away, as well as feeling nauseous 24/7. We are waiting months probably for our first consult with an autonomic clinic, and I am just looking for anything that might help....
Posted 08 May 2011 - 09:39 PM
Posted 08 May 2011 - 10:40 PM
I have had abdominal pain for 3 weeks straight now! Just came out of nowhere! I was hospitalized 2 weeks ago and they ran a bunch of tests but never found anything. Been taking all sorts of different meds to try to attack the pain but nothing helps. I know there are relationships between pots and abdominal pain but I need to be more educated on what it could be. ANy info is helpful. thanks.
YES! I've had abdominal pain for the longest time, like years. But most recently I had it constantly for about a year. Like you, I was tested and diagnosed with IBS (which I already had). Do you have any symptoms that accompany it such as diarrhea, nausea, vomitting, weight loss? I lost a bunch of weight and would get low potassium when I had bouts of diarrhea. My Dys doctor put me on Celexa (SSRI) and it helped. After about a month the pain started creeping back so I upped my Celexa and I've been doing so much better since November. Maybe talk with your doctor about trying that....start SLOWLY!!!