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Constant Abdominal Pain!


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#16 thankful

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Posted 14 July 2010 - 12:32 AM

One of my first symptoms with POTS was nausea and I've always had some degree of abdominal pain. I echo Max Mom's suggestions. I was at Mayo and did GI motility testing. The first week showed an intensely slow small bowel, and borderline slow colon. The second week they did further tests, and my motility was normal. Why I mention this is that just because some tests are normal, it doesn't mean there isn't a problem. Just the pain should be enough of a reason for testing.

Have you noticed if certain foods make it worse? Have you tried a liquid diet and does that help? If so, you could also have dysmotility and might benefit from a gastroparesis diet (low in fat and fiber, which slow digestion for those of us with special guts). And I read recently about a research center who is doing GI testing while the POTS patients are on the tilt table. They notice that POTS patients tend to have decreased motility when upright (opposite from normal patients, who have increased motility when upright). When I was really sick with POTS, I could only eat lying down or reclined or else I'd have much worse nausea and pain.

Best wishes that you find some relief.

#17 bruc

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Posted 30 March 2011 - 08:13 PM

25 years of constant severe debilitating abdominal pain.
Im also diagnosed with esophageal dysmotility and myopathy, small bowel dysmotility via manometry, severe colonic inertia, dysphagia.
Being treated for extensive SIBO which will be a lifelong re-occurring struggle. Keeping my bowels moving as best as possible with 17grams of Nulytely daily more as needed. They also have me on doxepin.

My neurologist has diagnosed dysautonomia of unknown form and attributes the GI dysmotilities to this.
GI specialist doesnt support a neuropathy cause due to antroduodenal manometry findings suggestive of myopathy.
My clinical and diganostic presentation are atypical, a hybrid.
Very confusing picture.

To date, 25 years later, I cant find any relief from this abdominal pain 8+ constantly and peaking very often.

How is dysautonomia causing this visceral pain?

Would diet help alleviate this pain?
Open to any suggestions.

#18 Bev Ray

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Posted 31 March 2011 - 02:19 AM

I have just endured a year long bout with what I thought was gall bladder pain in my upper right quadrant. Had all the tests and they all came back normal. The pain has increased in frequency and severity and when the HIDA Scan came back normal, my GI said it was due to the Autonomic Neuropathy. My neurologist at Vandy confirmed that it probably was AN causing the problem. The pain now has gotten to the point that it occurs daily generally after my first meal, something as simple as a piece of toast. After a regiment of erythromycin for a week and three days of a liquid diet with little change in my pain, I've now been referred to a pain specialist. The doctors don't know if the pain will ever go away or just wax and wane like other dysautonomia symptoms do.

So yes, AN can cause pain in the abdominal region with no explainable reason. If your pain is due to constipation, I agree with others who recommend Miralax. I was so constipated once that when my GI ordered a test requiring a colon cleanse, the cleanse did not move my bowels! Nothing! Constipation can cause horrible and excruiating pain! My GI told me that I could safely use up to 3 doses of Miralax in one day for the rest of my life. Now,Miralax is definitely my friend!

I have had gastroparesis and small bowel dsymotility for over 6 years; however, I am just now undergoing treatment for Small Intestine Bacterial Overgrowth. Talking about a very uncomfortable condition! I never had trouble with this problem before until the abdominal pain problem became quite severe. I know my digestion must be significantly slowered, but I'm not very nauseous-- weird!

I hope you find relief from your pain soon.

Bev Ray

#19 Worried Mom

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Posted 31 March 2011 - 09:08 PM

My son got worse suddenly last year with really bad abd. pn. and nausea every time he tried to eat. He lost 5 lbs. in 2 weeks and couldn't even eat his own BD cake because he felt so bad. His POTS doctor said that most POTS related GI issues are from poor or disrupted (like when you stand up) blood flow to the GI tract. He increased his Midodrine dose from 10mg every 3 hours to 10mg every 2 hours and it fixed it instantly the next day. The crazy thing is that he went from having a BM 5 times a day to being constipated the next day as well so now he takes colace but that's better than having abd. pain and nausea. It also helps when he eats with his feet up. Apparently the intestines require A LOT of blood whenever they want it in order to work properly-so selfish. His doctor feels that the symptoms are POTS related so he doesn't do all of that extra testing because he knows what the results will be from his extensive experience. So far he has been right and Kyler hasn't had to endure any invasive testing at all. Best Wishes in feeling better.

Serena

#20 PetuniasMom

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Posted 07 May 2011 - 05:01 PM

My son got worse suddenly last year with really bad abd. pn. and nausea every time he tried to eat. He lost 5 lbs. in 2 weeks and couldn't even eat his own BD cake because he felt so bad. His POTS doctor said that most POTS related GI issues are from poor or disrupted (like when you stand up) blood flow to the GI tract. He increased his Midodrine dose from 10mg every 3 hours to 10mg every 2 hours and it fixed it instantly the next day. The crazy thing is that he went from having a BM 5 times a day to being constipated the next day as well so now he takes colace but that's better than having abd. pain and nausea. It also helps when he eats with his feet up. Apparently the intestines require A LOT of blood whenever they want it in order to work properly-so selfish. His doctor feels that the symptoms are POTS related so he doesn't do all of that extra testing because he knows what the results will be from his extensive experience. So far he has been right and Kyler hasn't had to endure any invasive testing at all. Best Wishes in feeling better.

Serena


I noticed your post was at the end of March, and I was wondering if you would mind if I ask how your son is doing now, and if the larger doses of Midodrine is still controlling the tummy pain? My daughter is in constant pain that increases and decreases but never goes away, as well as feeling nauseous 24/7. We are waiting months probably for our first consult with an autonomic clinic, and I am just looking for anything that might help....

#21 Worried Mom

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Posted 08 May 2011 - 09:39 PM

That happened last March and he has been on that regimen for over a year now and it is working very well. Kyer's doctor said that he has apatient that takes it every hour in order to funtion. Kyler still has intermittant nausea but mostly only in the am when he needs to eat. He still has abdominal pain every time he tries to eat a large meal - as a teenage boy that is almost every day. The pain is not severe and it goes away when he sits still in a recliner. After 2 years of his diagnosis he has not had any tests other than a TTT and an abbreviated autonomic lab test that was completely non invasive - he has not even has a blood test from his POTS doctor. He has no signs or symptoms of anything like EDS or anything as well as no family history. I used to wonder if there was any other causative factor after all of the research that I did but now I realize that there is not any - it's the classic presentation of POTS and there is no need to do testing to show that the blood flow in his body is all jacked up and that causes malfunction of all of the other body systems. The brain, the gut, and the skin all fight for blood and oxygen and the brain always wins then the gut gets the leftovers and Kyler always looks like a ghost because his skin always looses. His muscles ache because they don't get the blood flow that they need and that causes fibro like symptoms and the exhaustion comes from the ever present battle to normalize the body and the body always loses because the auto pilot is broken. Kyler's doctor does not typically diagnose POTS pt.s as having FM, CFS, IBS or any other related illness because he has learned from many years of experience that it is almost all caused by the effects of POTS even though the symptoms seem like other illnesses. He must be onto something because people come from other countries just to see him. He has fixed the majority of Kyler's symptoms just with POTS treatments and without involving any other type of doctor (other than his PCP). Sorry for the tangent but I feel bad for people that get every test in the book and get no relief. I hope that this helps.

Serena

#22 Lovebug

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Posted 08 May 2011 - 10:40 PM

I have had abdominal pain for 3 weeks straight now! Just came out of nowhere! I was hospitalized 2 weeks ago and they ran a bunch of tests but never found anything. Been taking all sorts of different meds to try to attack the pain but nothing helps. I know there are relationships between pots and abdominal pain but I need to be more educated on what it could be. ANy info is helpful. thanks.


YES! I've had abdominal pain for the longest time, like years. But most recently I had it constantly for about a year. Like you, I was tested and diagnosed with IBS (which I already had). Do you have any symptoms that accompany it such as diarrhea, nausea, vomitting, weight loss? I lost a bunch of weight and would get low potassium when I had bouts of diarrhea. My Dys doctor put me on Celexa (SSRI) and it helped. After about a month the pain started creeping back so I upped my Celexa and I've been doing so much better since November. Maybe talk with your doctor about trying that....start SLOWLY!!!