Vibrating/trembling On The Inside?
Posted 06 December 2009 - 11:04 AM
This is a new symptom for me - just wondering if many of you experience it too and if anyone can shed some light.
Posted 06 December 2009 - 11:33 AM
I get this quite a bit----usally when I try to do too much. I'll get this when I cook, do chores, or try to stand up too long. Shopping does it to me too. My time with that is very limited in all of these.
It's a vibrating sensation in a rhythmic fashion-------mmmm----mmmmm----mmmmm. Your're right, it feels like a vibrating cell phone, but on a much bigger scale. It's very uncomfortable, and when it first started it used to scare me, no I just attribute it to another weird symptom of ANS dysfunction, EDS, and spine instability----------not sure which is causing it.
Posted 06 December 2009 - 11:45 AM
Posted 06 December 2009 - 12:53 PM
Posted 06 December 2009 - 01:37 PM
Palpitations 75% (Grubb, 2000)
Tremulousness 37.5% (Low, Opffer-Gehrking, Textor, Benarroch, Shen, Schondorf, Suarez & Rummans, 1995)
Shortness of breath 27.6 % (Grubb, 2000)
Chest discomfort and/or pain 24.3 % (Grubb, 2000)
from the dinet page
Posted 06 December 2009 - 02:36 PM
If the muscles are vibrating slightly it could help by keeping some musculoskeletal pump action going (assisting blood return to heart) to make up for lack of overt muscle movements. That angle would make it an adaptation along the lines of other key POTS symptoms (except spanning more than just circumstances of orthostatic challenge).
Chemically, there are likely more than a few things peaking or troughing in the AM in preparation for awakeness... I've heart cortisol should be coming up strongly and in reading of LDN (low dose naltrexalone) happened to notice a statement that endogenous opioids are peaking just before waking (which matches the timing of this for me perfectly).
I've tried to guess a "frequency" or pitch to it as well, since sometimes that gives a neurological clue, but it is hard to tell. I've also looked in to "muscle fibrillation" (not heart kind), which perhaps coincidentally fits "how this feels" for me perfectly. The latter tends to relate to neuropathy or muscle atrophy. I don't personally have an overall atrophy, but there might be a low grade cycle of it... particularly if things like post-exertional muscle growth were perturbed. That happens to involve complex processes of angiogenesis... blood vessel adjustment & formation... which involve things that could be problematic in POTS folks like intentional stages of "leakiness" in vascular bed (during growth), localized vasodilation facilitating extra supply & clearance, significant release of localized messengers that we may mis-react to, etc.
If disturbance in or related to those low level things were going on, it could time with a few things like both post-exertion & nightly growth phases (it is when the body focuses on these things)... anyway, existing or new little nervies could be either goofed, or perhaps just naturally helping by subtly stimulating some extra circulation. Also, if there is turnover in muscle tissue (which is said to be a natural cycle especially after exertion), new fibers might be expected to fibrillate (just like denerved ones) as a normal course of development (or exacerbated by slower nerve regen if that is the case).
Posted 06 December 2009 - 04:28 PM
Erik, I found your info very interesting - thanks for taking the time to write all of that. Like you, my "inside shakiness" only occurs upon waking up. Each time I have been waking up from a dream - not a stressful dream though...just a regular dream. It's like my body is having trouble going from the sleep stage to the reality stage. A bit concerning....all of my neurological symptoms seem to be progressing so I hope it's not a sign of anything worsening....hoping this won't be an every morning occurence it's a bit disorienting!
Posted 06 December 2009 - 05:42 PM
Not sure if it was just a coincidence or not, but I kind of transitioned from a period of frequent myoclonic jerks (a harmless seizure thing) into a phase of this mini-tremble & hum thing. So it also makes me curious if some fine tuning of "action potentials" in the neurons is at work too (like ion concentrations and the like)... since it's kind of like a low idle of an engine warming up... in contrast to my prior mis-firing of the myoclonus. Like my body adjusted things as best it could but was left with this slight artifact (inability to fully shut off muscle stimulation noise at times). Just more conjecture, of course! This thing has intrigued me since it's different than the tremor and wobble that I get while attempting to stand up & still... as the sympathetic system comes rushing in to compensate for inadequate natural orthostatic response.
Posted 07 December 2009 - 12:13 AM
Posted 07 December 2009 - 07:46 PM
Posted 07 December 2009 - 08:07 PM