Posted 04 July 2009 - 10:23 PM
I just started putting two and two together...when I sit in my recliner my butt muscles are my lowest point.....and that is where it really hurts... I am not sure if this makes sense to any of you...
Posted 05 July 2009 - 03:37 AM
Posted 05 July 2009 - 08:04 AM
I get blood pooling in my feet like you do, but usually it's much worse in my abdomen. I'm always 'bloated'. How lovely. I think part of it is also from my whacked-out digestive system. My feet do turn red and purple when I stand, though.
Posted 05 July 2009 - 02:04 PM
Posted 05 July 2009 - 02:10 PM
Along with the pooling, I have just plain old edema. No one is really sure why...lot's of possible answers. If I have a day in which I'm up and about more than usual, I can hold onto 10-12 lbs of fluid weight. Doesn't help me as it obviously isn't staying where it could do me any good.
Posted 05 July 2009 - 02:17 PM
If I sit up or stand my feet are either blotchy red or purple. It corrects to a normal color when I lay down. I have wondered the same thing because I think that based on the symptoms I get I experience inappropriate blood pooling in my GI tract and other places, but I don't know if there is a definitive way to verify this. I do often have a blotchy purple or red pattern on my abdomen though, similar to my feet.
Posted 07 July 2009 - 04:04 AM
I think other forms of POTS may result in pooling exclusive to the stomach region through a variety of suggested mechanisms.
Posted 30 June 2010 - 01:02 PM
The biggest, strangest symptom she has had though, is a "generalized" edema that affects mostly her butt, thighs, stomach and for some strange reason her breasts. It is definitely improved since they put her on florinef, midodrine and dextroamphetamines, but by no means controlled. Whenever she is tired, stressed or exercises, its like she's not on the meds at all and her body swells - a lot. Because she tries to stay active to avoid deconditioning, and because she was/is an athlete, she ends up carrying approximately 10 pounds of water around constantly and it makes her really uncomfortable. We have been told that the norepinephrine that she lacks is important for vasoconstriction and i am assuming this is where her problems lie, but in all the reading i have done on these boards (love, love these boards), i haven't seen too much mention of this kind of edema. Does anyone else have this? If so, do you do anything that helps, or have you been given anything that helps? Thanks so much.
Posted 04 July 2010 - 07:20 AM
Posted 04 July 2010 - 12:17 PM