I See Veins. Do You See Veins?
Posted 11 January 2009 - 06:53 PM
Is anyone else veiny like this??
Posted 11 January 2009 - 07:13 PM
Posted 11 January 2009 - 07:38 PM
Posted 11 January 2009 - 07:45 PM
Posted 11 January 2009 - 08:38 PM
Are your joints hyperextenable and is your skin extra stretchy? If so, you might want to bring Ehlers-Danlos up with your doctor.
Ehlers-Danlos is the reason behind my POTS.
Just a thought.
Posted 11 January 2009 - 09:57 PM
Posted 11 January 2009 - 10:04 PM
Posted 11 January 2009 - 10:27 PM
Hypermobility and stretchy skin are signs of Ehlers Danlos, whatever type.
"The malignant form of EDS (type IV) owes its bad reputation to a proneness to spontaneous rupture of bowel or large arteries. Paradoxically, other manifestations are less dramatic than in some other forms of EDS. For example, joint hypermobility may be confined largely to the fingers and whereas the skin is strikingly thin and translucent, it is only mildly hyperextensible. Bruisability, however, is very striking; indeed, 'ecchymotic type' is a synonym for type IV."
Hypermobility and extra stretchy skin is NOT a symptoms of Ehlers-Danlos Syndrome, Vascular or Type IV; BUT the translucent skin, with easily visable veins is a symptom, as are prematurely aged hands, and easy bruising.
Posted 11 January 2009 - 11:06 PM
I see my veins but we also see my husband's veins and he does not have this disorder. The difference between us and a healthy person is that our skin turns blue when we stand up.
Posted 12 January 2009 - 03:07 AM
The recent work by Dr.J.Stewart has been looking at POTS from a different angle - and he believes High Flow Pots which is perhaps caused by Peripheral neuropathy results in excessive venous pooling in the extremities or legs in particular. On the opposite, Low Flow pots results i excessive venous constriction as would 'Hyperadrenergic' POTS caused by excessive peripheral vasoconstriction.
Dr.J Stewart has also suggested that Normal Flow POTS - characteristed by excessive peripheral vasoconstriction and almost exclusive blood pooling in the stomach - is often associated with EDS.
But I guess my point is not all of us have blood pooling in legs, feet or hands. I certainly dont.
Posted 12 January 2009 - 08:25 AM
Posted 12 January 2009 - 09:48 AM
Thanks for the clarification, Sara. I re-read my post and I wasn't clear You're right, hypermobility and stretchy skin symtoms are most definately signs of EDS, but not what geneticists look for when DXing type IV. Things like super visible veins, premature aging of hands, and easy bruising, history of familial (or personal) anuerysm/dissections would be much more indicative of type IV. A long list of other symptoms is available on:
Hi guys, I just wanted to mention, in re to the premature aging, very visible veins & aneurysms, these things CAN occur w/ CEDS too not just VEDS.
We have CEDS in my family. Most of the woman on my moms side of the family are extremely veiny. Many of us ave premature aging and I have a "bulbous" vessel in my neck (probably the beginning stages of aneurysm).
I wanted to mention this as I had an MRI a couple fo years ago and because the bulbous vessel was only slight, the radiologist did not think it was important enough to tell me PCP. I read it on my report and showed it to Dr Nazli w/ the NIH. She said it needs to be followed.
So if any of you have EDS and have had MRIs, get a copy of your reports & disk.
About the original post, yes my skin is pretty translucent & can see my veins and I am not all that pale. My veins bulge after shower or bath, but cardiologist says that is due to the heat. They also bulge while in bed, I use a lot of blankets so again probably from the heat.
Posted 13 January 2009 - 09:59 AM
Posted 13 January 2009 - 02:00 PM
Soory to be dumb, but what is CEDS?
CEDS stands for Classical Ehlers Danlos syndrome.