Coat Hanger Pain
Posted 28 August 2008 - 07:35 PM
Posted 28 August 2008 - 08:08 PM
I got a new PCP who referred me to a rheumatologist, and she told me I have degenerative disc arthritis in my neck. I take Tylenol arthritis formula.
Posted 29 August 2008 - 12:56 AM
so...in terms of who to see? true coathanger pain as it relates to dysautonomia is an autonomic issue so it's not likely that anyone but the autonomic docs will "get it". for me it's better the better my OI/ OH is controlled. as ernie mentioned also, midodrine is a part of that equation for me, though by no means does it alleviate the issue for me anymore (it used to.) i'm surprised you haven't heard the terminology before as i'm pretty sure it's been discussed on the forum several times....
sorry to not have a better fix to offer, but you're definitely not alone!
Posted 29 August 2008 - 10:38 AM
Posted 29 August 2008 - 11:32 AM
Posted 29 August 2008 - 05:18 PM
The other thing that helps is (as always) water and salt loading, the better your BP is controlled the less likely it is that the brain will steal blood from those muscles.
It is also worth being aware that neck and shoulder pain is a very common complaint in otherwise healthy people and it can be caused by poor posture, using computers for too long and carrying things.
Posted 29 August 2008 - 06:42 PM
In the past, I have found relief with Tylenol 3 and Vioxx. For now I am taking double doses of Alleve around the clock and can barely function. I'll have to see what my internist recommends. I know I'm burning the candle at both ends. School has been in session for over a month here in the South, and with our newly harried pace I've been getting too little sleep, etc. I drank lots of gatorade today and do feel a bit better. My heart breaks for those of you who deal with this daily. It is the worst.
Posted 30 August 2008 - 01:06 PM
I have to say though, since I started Midodrine a few weeks ago, I feel like my pain has lessened... and my migraines have gotten better (although time will tell with that). I don't know if the increased blood flow to my brain has helped keep the pain away, but it sure feels like it!
Posted 02 September 2008 - 09:11 AM